We had been waiting to hear back from the Neurologist who lives out of state - to find out what he thought of her scans, and what tests to run further. It took awhile... so we'd been waiting. Dr. Kleber (our natural doc) called to have me come in this week to talk about which tests he thinks we should order.
I had some puzzling - but good news to report to him - which I'll share with you all as well. Over the past 2-3 weeks - I have not been noticing nearly as many seizures in Gia. At first, I thought it was the good weather we'd been having (that the girls had been playing so much outside - maybe I'd missed some?) Still... it seemed I only saw one every 3 days or so... (as opposed to 2-4 per day, consistently). Last week everyone got a stomach bug. Gia wanted to be held constantly - and we were all inside, sicky. In that whole week - I saw NONE. And still - as of today... her seizures seem to have slowed to a complete stop. Thank you, Lord!!
When I shared this with our doctor - he said he was glad to hear it, and that he'd rather see them be irregular, rather than predictable and consistent. The way he explained it was - (he used his pen to make a line) - there's a threshold that she crosses. When she does, she has seizures, when she's on the other side of the threshold, she doesn't. It seems she is living right on or near this threshold, and it could be many things that push her over it (the line, or threshold) - where she ends up having the seizures.
Both Dr. Kleber, and the other Natural Neurologist both seem to feel that her brain condition is not something to be gravely concerned about. When we sent the MRI and EEG results to the Neuro in Milwaukee - Dr. Kleber asked him if this was something that would seriously affect her for the rest of her life... he said 'absolutely not'.
The more I've had time to let the news of her 'brain abnormality' settle.. the more I wonder... if everyone were to have their brains/bodies scanned - would we all look the same inside? Wouldn't there probably be many 'abnormalities' in us - some causing problems, some not?
Obviously, since her seizures were happening in the same part of the brain where the 'abnormality' was seen - there is something there. For now, I guess I see it more as a 'weakness' in her body that makes her prone to having seizures. (It is strange to me, that her being sick with the stomach flu didn't trigger any - she had none during that time).
Dr. Kleber said there could be many things inside her system that could cause her to cross that 'threshold' - a low-grade infection in her body, a blood issue, thyroid imbalance... many things.
We plan to run the tests that he is suggesting - a full blood panel, and a urine test which will show neurotransmitter activity. These tests are expensive, so we need to save up for them...but it will be interesting to see if something stands out that might be a trigger in her system.
It is crazy to me to think that our Pediatrician wanted to start her on anti-convulsant drugs even prior to having the MRI scan. To think... if we had gone down that road so early...we all would have thought that it was the drugs that made her seizures stop... and then we'd have probably been afraid to take her off of them.
I know that the future is still so unknown. She may have more seizures - it may get better or it may get worse. We are trusting in God's perfect plan for our baby girl - and are just so thrilled and thankful for now - that she is doing so well.
So that's the update!! Thank you for all of your love and prayers for Gia Rose.
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| Opening a gift in the mail... excited! |
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| Pretty eyes... picture taken by big sister Ruby |
